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Aug11

Visit to a Brooklyn, NY Clubhouse

by admin-tca on August 11th, 2015 at 1:31 pm
Posted In: Uncategorized

On Wednesday, July 29th, 2015, I had the pleasure of spending about three hours at the East New York Clubhouse in Brooklyn.  I arrived at 10:45 am and after Larry helped me sign in as a visitor, was given a thorough and friendly tour by Bernard.  The clubhouse occupies the ground floor of a building located at 2697 Atlantic Avenue. We started the tour at the front door with the Reception Unit, where the sign-in desk is on one side and the Employment and Education Unit on the other. As we moved towards the back, I could see the large area that is the Food Service-Snack Unit. Passing through a doorway we entered a very nice, spacious and well-equipped large kitchen. Off the food service area is the Director’s office, and next to it is a meeting room.

The cleanliness of the clubhouse is striking. I was also impressed with the friendliness of the many members who clearly were pleased to have a visitor in the clubhouse.  I particularly enjoyed my conversations with Anthony and Norma, among others.  Norma contributes to the program as an ESL expert.  Later I also talked with Paul about his experiences with his Transitional Employment placement at Jackrabbit Deliveries, which was written up in The NY Times last November.

Following my tour, I met with Katrina Grant (the Director), Bill Lampert (the E&E Unit leader) and Margie Staker, (another visitor on tour). We discussed the program:  The clubhouse has been in existence for 20 years.  They just had their Clubhouse International (CI) certification visit, for which they received provisional three-year certification, pending attention to a couple of matters.

During this discussion, I learned that about 20% of the membership is undocumented. Housing and clinical needs are a major issue, along with financial benefits.  Following this meeting, we had a great lunch.  The main menu was pizza, prepared by Gregor and a couple of other members and staff, Jamala. The coffee was fresh and good.

After lunch the afternoon unit meetings were held and I sat in at the E&E meeting, conducted by a member.  Afternoon tasks were chosen by the some six members and two Occupational Therapy (OT) interns, and included activities such as reaching out to absent members, cleaning tasks, for which the staff (Bill) was joined by members.

Other relevant employment and education issues were discussed.  At the close of the meeting one of the members asked me if I was there to become a member.  When I responded that I was not good enough to become a member, she stated that I was a good person and I should not berate myself.  I was very touched and said that while I was a good person, I was not good enough to become a member.  She laughed and moved on.

There were some 30 members present during the time I was East New York Clubhouse, which was a strong attendance in view of the fact that it was one of the most miserably hot and humid days of the year thus far.  I am looking forward to involvement in Advisory Board of this clubhouse, as it is a good program, clearly dedicated to in becoming even better.

Readership comments are most cordially welcome at the URL below or by writing to

tandcassociates@gmail.com

We at TCA maintain editorial rights over feedback, discussions and comments.

 Comment 
Jul03

Forgotten People Never-to-be-Forgotten (A Series): Lesson 19

by admin-tca on July 3rd, 2015 at 4:23 pm
Posted In: Uncategorized

Giving is Receiving – “We are not Alone”

One of the most important of the core values found in the clubhouse model is that of self-help through mutual help.  This notion that giving to others provides a gift to the giver has remained strong over the years..

Michael M. provides a perfect example of this lesson. A Harvard graduate, alcohol and mental illness lead to his hospitalization at Manhattan (NY) Psychiatric Center (MPC) in the mid 70’s.  A project of bussing patients to Fountain House for the day was initiated at this time, and Michael was one of the patients who participated.  Soon he was discharged and over the years remained an active member.  While the project was terminated for state budgetary reasons, Michael never forgot how he arrived at Fountain House.  In 2005, a new initiative with MPC entailed having members go to the hospital on a weekly basis, meet with patients, and describe Fountain House to them.  He was one of the first to join this group, saying:

I had been a patient at MPC in the eighties before I joined Fountain House and the idea of going out there seemed like it might be rewarding, considering how I felt that FH had helped me get out of the hospital and get a new lease on life.  I know what it felt like to be stuck at MPC as I was there for almost seven years.  It has been very rewarding.  I’ve met many patients who, just like me in the 1980’s, don’t have many prospects– if and when they get out of the hospital.  Most of them get interested in FH and ask that applications be sent to their treatment teams.  So far we have received at least 30 applications and we’ve accepted more than 10 new members.  I’ve presented three of these applications to the FH Intake Committee and all of them have been accepted.  This has been a very rewarding experience for me…it’s one of the best things I have ever done.

George puts it another way, telling MPC patients:

I’m here to say that if I can make it in life, you can too.  Don’t let your past stand in the way of you having a better future for yourself.  That’s what this country is based on; it is the Land of Opportunity, and we are entitled to the same rights as any other red-blooded Americans.  The reason I say this is because if it was not for Fountain House, I too would be at MPC or some other place with doctors ready to throw away the key for life.  Doctors felt I was a threat to society.  But when I came to Fountain House, I didn’t let that stand in my way and you shouldn’t let your past stand in your way either.  At least check out Fountain House. I don’t think you’ll have any regrets.  I know I didn’t.

Greg talked about why he got involved in this project:

I believe we all have our stories to tell.  That is one of the reasons we go, to listen to (their) stories — how they got there, why they are (still) there, what do they want to do when they get out?  Our weekly conversations run the gamut…and give those who may never get a chance to be heard…While I cannot offer a lot…I can give them the attention they need, even if only for a few minutes a week.

Michael G. is a simple, soft-spoken older man who is satisfied when two goals are met.  The first is being employed, which he has accomplished, working at a local restaurant.  The second is going to MPC each week, meeting with inpatients to talk about his having been at that hospital for years, and is now free of that.  He believes that anyone there can also gain their freedom and pursue their goals and aspirations, as he has.  In his words he came to Fountain House after being:

…a patient at this center.  Now I’m working, and I go (on) Tuesday to influence…people who are on their way out.  Believe me, Fountain House is the best thing that happened to us.

Daneen is a “graduate” of the MPC Children’s Unit. She sums up her involvement:

We go Tuesday evenings and we all talk with the patients about joining Fountain House to get a second chance.

I have given much space here to the MPC project, not only because it has provided ample opportunities for several members of Fountain House to “give back.”  But it has also led to a number of long-term patients beginning to believe that a bright future is possible.

Equally as important the project has had a deep effect on me.  It has completed a circle that began a half-century earlier, growing up among state hospital patients –people — who influenced my outlook and career to being among such a group near the end of that career.  In turn perhaps my career over the years at Fountain House, including working with both Michael M. and Michael G., Daneen, Greg and George helped influence their outlook and future.  As an extra gift this completion included a second group (members) within which there exists a self-help through mutual help dynamic for all of us.

On a different level, this lesson is also taught with the example provided by Henry.  Henry had been in the hospital for 23 years when he joined Fountain House in 1974.  He went on to TE and also moved into a Fountain House apartment.  When a vacancy in that apartment occurred he offered it to a homeless member he had met, Norman.  Thus, began a relationship that very much played on the theme of giving is receiving.  Henry provided a home to Norman. Henry also served as an inspiration to Norman by going to his independent job very early every day.  Norman began to believe that it might also be possible for him to go to work someday.  This was, of course, what happened.

In return, Norman through his talents was able to make repairs in the apartment, and also later cared for Henry in his last days.  A better example of self-help through mutual help and giving is receiving cannot be found.

Forgotten People Never-to-be-Forgotten                                                                     photo by ciri-leiknes

As usual, this posting is part of a larger body of work pending publication.  Any quotation, or reference to it (or others) must be made with the authors’ permission, which may be obtained by contract through the e-mail listed below:

tandcassociates@gmail.com

or by contact via the URL below.   Readers’ comments and feedback are welcome by the same means, which will be edited and published for further discussion.

 Comment 
May13

Forgotten People — Never to Be Forgotten (A Series): Lesson 18 – The Role of Humor

by admin-tca on May 13th, 2015 at 5:23 pm
Posted In: Uncategorized

While the major part of relating to men and women in their fight against the demons of mental illness must be a serious and hard-hitting effort, there is also a place, in fact a need, for humor. Sometimes the best way to combat the expression of suffering is to “shock” a change through humor. Such an approach can only be effective, in our judgment, when a trusting and understanding relationship has been formed.

Robert was a man given to expressing his “lamentations” at the drop of a hat. Often, my approach, especially when he lamented in public, was to ask his permission to stomp as heavily as I could on his left (or right) foot. Usually, his response was to look at me strangely enough for me to ask again. Almost immediately after the second time, he invariably paused and then gave a large grin and changed the subject to something more relevant to the situation.

Peter, on the other hand, reversed the roles, as humor was a large part of his life and was often expressed with his composing and sending stencil-printed cards, celebrating both events and non-events, to wit:
____________________________________
|                 THIS IS A FREE CARD                  |
|                     It’s not good for                         |
|                 Anything – it’s just                         |
|                             FREE                                |
|      TO: Thomas J Malamud 15 June 1995    |
|___________________________________|

Grace had a droll self-deprecating sense of humor. She would comment about something she didn’t understand by exclaiming: “That went over my head like a gown!” My hunch was that she really did understand, but wanted to have a little time before responding.

Nicknames can be a humorous way to acknowledge the depth of a personal relationship, to wit:

Richard, all 6’6” of him, got a kick out of his nickname –“Tiny”

Steve always responded with a smile to the nickname “Steverino”

Danny U. who never gave up; worked until the day he died. He hadn’t worked for years, had long hospitalization, came to program, had a couple of TE placements, then went to full-time at Newsweek magazine and got married. He always chuckled when I would call his home and ask for “Ungerungerunger”. When he would check in with me he would always identify himself the same way.

Mark was the “Ace”; I was the “coach”

Maria B said that she was the “bane” of my existence.

George sometimes got so concerned about achieving his vocational goals that he would become almost paralyzed. At these times, all I would need to do was to mention “the plan”, “What is the plan, is this part of the plaaaaaan (sic)”? George would stop, begin to smile, and invariable say: “it is not part of the plan, it is the plaaaaan (sic)!” Making a joke did not deny the importance of the issue; it provided the kind of relief that made further action possible.

Fred, a deaf member of Fountain House is a hulk of a man, about six foot two, 250 pounds and a bright happy fellow who has become well trained in the use video equipment. He pretty well sums up the importance of humor as follows: “(Tom) would joke and tease me and sometimes stick his foot out and pretend to make me trip. (He) would have different games and fun things in his office. I remember the cute little monkey he had in his office. I like the monkey because it would bang on the drums and move around. I also liked the other things in Tom’s office because (he) likes to have fun. Tom would always include deaf members, and when he wanted to talk he would always get the interpreter.”

Vincent was as close as anybody at Fountain House came to being a ”flower child”. He was a strange, mystical, most intelligent, contrarian who certainly marched to his own drum. Vincent joined Fountain House very early, around 1950, after some years of hospitalization and never was hospitalized again. He had no desire to be employed in the usual sense of that word, choosing rather to follow his unique path to fulfillment. He married Margaret (another very bright member), they lived close to Fountain House for a number years until he was run over by NYC bus. Among his many attributes, he was a prolific composer of fables, about which it has been said:

We read Vincent… because through his work we may grasp an historical perspective. (He) is our Dead Sea Scrolls, the key, the missing link: it is he who magically embodies, through his subtle epigrams, the living pulse of American literature in unbroken continuity from last generation to this.  (David Latimer, in his Introduction of “Fables” by Vincent, published by Come!Unity Press, New York, NY, 1973.)

                                          Vincent   (Photo from “Fables”)

Here are some of his fables:

Once a dog had a bone. He was satisfied with it until he saw a dinosaur skeleton in the museum.
Moral: There can be too much of a good thing

Once a bird found a rock and sat on it for twenty years. He kept it warm and nice but it didn’t hatch.
Moral: Such perseverance for nothing

Once an intruder was making a lot of noise on the roof. The householder went up and this dialogue ensued:
“Who are you?”
“Mumble, mumble.”
“I don’t care who you are, get those goddamned reindeer off my roof!”
Moral: No telling who you’ll meet in the winter.

Once a lost bird flew to Algeria. The crows received him with open arms and wings extended in friendly solidarity.
Moral: Algeria’s okay if you’re a bird.

Once a flower sat in a bed of skunk cabbage. He made the air nice and sweet but a little girl came along and picked him off.
Moral: Don’t be too noticeable or you’ll be “offed”.

Once a dog had a bone and he hoarded a lot of them but he wouldn’t give anyone else any so the other dogs ganged up on him and took all his bones and stored them away for themselves.
Moral: Comes the revolution everyone has bones.

Once a pig and a wolf fell in love and got married. The pig had a large salaried position with the police department and the wolf fell right into his orbit. Their parents thought they were incompatible but they turned out to have some things in common.
Moral: Some pigs are wolfish and some wolves are piggish.

As usual, this posting is part of a larger body of work pending publication.  Any quotation, or reference to it (or others) must be made with the authors’ permission, which may be obtained by contract through the e-mail listed below:

tandcassociates@gmail.com

or by contact via the URL below.   Readers’ comments and feedback are welcome by the same means, which will be edited and published for further discussion.

 Comment 
Apr06

Forgotten People — Never to Be Forgotten (A Series): Lesson 17 – Hope

by admin-tca on April 6th, 2015 at 10:49 am
Posted In: Uncategorized

The movie “Shawshank Redemption” tells the story of two long-term convicts and their respective battles for identity, dignity, respect and personal freedom. Faced with a life-sentence, one uses his training and talent to maintain his individuality and to live as a “free” man, at least in his mind, not letting prison enslave him. This modeling affects the second man who is then able to move from feelings of fatalistic despair to those of hope and a future. In the end, both gain their freedom.

This theme could also describe many people who are currently long-term patients of state mental hospitals. Despite an image of shuttered hospital doors and de-institutionalized patients after the 1970s, state hospitals still account for the care and treatment of more than 30,000 people. Many of them are buried in a deep sense of hopelessness, which is compounded by neglect from having been forgotten.

Yet, with help, interest, and inspiration, they might gain hope, look to the future and plan for their post-hospital life. With this in mind, a pilot project involved members from Fountain House going out to Manhattan Psychiatric Center (MPC) for two hours every Tuesday evening to meet long–term hospitalized inpatients for the purpose of discussing future post-hospital plans.

As George put it one Tuesday evening at MPC — reminiscent of “Shawshank Redemption”:  If it was not for Fountain House, I, too, would be at MPC, with doctors ready to throw away the key for life. Remember, dare to dream. I’m here to say that if I can make it in life, you can, too. Don’t let your past stand in the way of you having a better future for yourself.

I got to know Michael N. at MPC during our Tuesday evening visits. As we talked about Fountain House and his plans after discharge, he became more and more intrigued about the future. One Tuesday we discussed the importance of discovering hope for someone locked away in a state hospital, and at my request he submitted the following for publication in the weekly issue of Fountain House Today:

On the Inside Looking Out

Once a week, representatives from Fountain House (come) to Manhattan Psychiatric Center on Wards Island. I am a patient here at MPC and I have been meeting with (them) for 6 months now. I became enthusiastic about becoming a member of Fountain House, basically because I have something in common with the Fountain House perspective, which is people with mental illness can and do live happy lives even with such an issue.

On the other hand, I am impressed with the idea that there is a place where I can start a new life after hospitalization…. Indeed, I consider myself lucky to be a candidate for membership in Fountain House.

Chris summed up the process of discovering what could be possible:  After hearing about the years that some had been there [MPC], I began to think that I would never be discharged. One way the time went quickly was looking forward to Tuesday night meetings…with Fountain House staff and members. Learning about Fountain House was new to me. I was attracted to what Fountain House had to offer in terms of housing, employment and education. While at MPC, I filed an application and was accepted. Soon after, I was discharged.

Joe described the importance of getting away from the hospital in the following way:  I first came to Fountain House in April of 1982 when I was a patient at Bronx Psychiatric Center, and at the time, I was just glad to get out of the hospital for the day, to just come some place to get away from the ward. And I came to Fountain House for a few months, making that long walk off the grounds of Bronx State, taking the subway in and taking the subway back, and taking the long walk back in every night.

Michael D. was much involved in the program we had at the High Point Farm Project in northwest New Jersey, where among other activities visiting colleagues from clubhouse programs elsewhere would spend a few days as part of their training experience. Interesting discussions ensued on these occasions and following one such weekend series of discussions, Michael sent me the following letter:

Much Ado about Something and Someone

Dear Teacher,

A while ago on a colleague weekend at High Point – at one o’clock in the morning – you said that there is no life after death.

Since that time that thought keeps popping into my mind. And so, this letter.

Do you consider yourself an atheist?
Can a person believe in God and not believe in life after death?
Did you always think – better, believe – that way?
If not, what made you change your mind?

Whenever anyone asks me “What is a good Christian?”, I tell them to hang around with a good Jew, a good Moslem, a good atheist, a good agnostic, whatever!

If there is no life after death, why can’t I try to get away with as much as I can? Why can’t I steal? Rape? Fornicate? Lie? Kill? Whatever?

If you really don’t believe in life after death, why are you a man of such high morals? Why do I feel a lot closer to the God I believe in when I’m near you than when I’m near most people? In other words, why are you so good, if you’re going to end up so bad?

That’s it, Teach! That’s what I wanted to talk to you about.

See Yah,

If there is life after death, and if there is a judgment, all – atheist, agnostic, Christian, Moslem, etc., etc.,, will be judged the same way: “What good – if anything – have you done with your time?”

Paul put it best: “We see through a glass darkly.” However, to be honest with you, I can’t see through the glass. I “see” nothing beyond it. I simply live in hope.

Michael D. (photo by J. Confino)

Michael D. (photo by J. Confino)

Not only did Michael D. live in hope, he also conveyed hope to many others in his life. His mere presence and wonderful use of language was most uplifting to those around him, including me.

 

As usual, this posting is part of a larger body of work pending publication.  Any quotation, or reference to it (or others) must be made with the authors’ permission, which may be obtained by contract through the e-mail listed below:

tandcassociates@gmail.com

or by contact via the URL below.   Readers’ comments and feedback are welcome by the same means, which will be edited and published for further discussion.

 

 Comment 
Mar02

Forgotten People — Never to Be Forgotten (A Series): Lesson 16 – The Role of Charity

by admin-tca on March 2nd, 2015 at 11:23 am
Posted In: Uncategorized

I learned over the years that a little charitable giving could accomplish an enormous amount. Much of this learning was provided thanks to the presence of a most unusual private foundation in New York City with whom I became an almoner. Each year the Fund provided its Almoners with an amount of money to make available to those in need of emergency funds.  The three stipulations were that those receiving money had to be residents of New York City, grants could not exceed $750 and the donating Fund’s name must be kept anonymous.

                                                                                          Photo: c malamud

As an Almoner for nearly 20 years I granted awards amounting in total to nearly $90,000.  To give some examples of how just a little award can significantly enhance a person’s quality of life and ability to achieve goals:

When Tom joined Fountain House, he and his cat moved into SRO housing.  The cat needed to be neutered in order for Tom to keep him in the apartment and so it was decided that a grant of $56 paid directly to the vet would be in Tom’s best interests.

David has been a very active member who completed several TE placements.  However he suffered a setback and had to be hospitalized.  After his discharge he was unable to support himself financially and so he needed to be employed as quickly as possible.  He was granted a mere $50 to purchase clothing for the TE position he obtained.

Fabio, after becoming a United States citizen, received a much needed $100 to obtain a US Passport in order to return to his native Columbia to marry his fiancée and then bring her back to America. .

Reginald lost all of his identity documents.  He was a permanent resident and most anxious to obtain duplicates in order to go to work, obtain needed benefits and secure housing.  A small donation of $88.25, allowed Reggie to receive a copy of his birth certificate from Jamaica with which he was able to get the remaining documents and subsequently start a TE placement.

Bert a man in his mid-60’s had been an in-patient at Manhattan Psychiatric Center for many years. Upon meeting him, one is struck by his dignified bearing, wry smile and soft-spoken manner.  He was a regular attendee at the Fountain House sponsored Tuesday evening socials held in the hospital’s snack bar.  One such Tuesday, we learned that his brother had just died, and that the funeral was to be held that following Monday.  Bert felt he was unable to attend because he did not have the appropriate clothing and the hospital could only provide a shirt and tie.

One of the Fountain House members asked and got his measurements including shoe size, and by the end of the week had, through the Fund’s help, purchased a black suit and matching black shoes. That Saturday, she and another member, on their own, traveled to Ward’s Island in the middle of the East River to deliver the new attire to Bert.  On the following Tuesday, the day after the funeral, Bert arrived at the snack bar all dressed up. Smiling from ear to ear he reported on the funeral, expressing the family’s appreciation for his being there, as well as his own gratitude for the opportunity.Within two months of that Tuesday, Bert was discharged from the hospital.  He became a member of Fountain House and is “giving back” by attending the Tuesday evening socials to help inspire other patients to plan for their discharge.

For many individuals receiving Medicaid or Medicare benefits, certain events occur for which such benefits are not available:

While Ray was enrolled in graduate school, he supported himself with per diem social service work, supplemented by SSDI and Medicare benefits.  When he broke his eyeglasses Medicare was not available because not enough time had elapsed since his last prescription. $440 allowed him to obtain new glasses, complete his semester’s work and go on to receive his degree.

Antoinette needed dental work not covered by Medicaid before she could go back to work.  We provided the $400 required for the procedure.  Antoinette was able to subsequently obtain employment and was adamant about repaying the advance for the use by others in need.

Educational needs were a third area were a little money helped in a big way:

Gladys needed help to maintain her job and her academic status.  A grant of $500 made it possible for her to get needed textbooks for her graduate courses and procure proper attire for her new job.

In order for Randy to  succeed at completing a course on Computer Animation at the NYU Center for Advanced Digital Applications, she had to acquire a pair of “Definity” lenses so she received the $340 she needed to purchase them

As usual, this posting is part of a larger body of work pending publication.  Any quotation, or reference to it (or others) must be made with the authors’ permission, which may be obtained by contract through the e-mail listed below:

tandcassociates@gmail.com

or by contact via the URL below.   Readers’ comments and feedback are welcome by the same means, which will be edited and published for further discussion.

 Comment 
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